Associations Includes those at state, national and international level.
Australian Sites :
ASBHA [The Australian Spina Bifida and Hydrocephalus
Association] Find information about these conditions, Fact Sheets, Ask an Expert, Awareness Month and more.
Association for Children with a Disability Parental Support
Service, Fact Sheets, siblings, dads, links to other sites, regional contact information and more. Links are grouped under
multiple directories from Accessibility to Transport/Travel.
Brain Australia The Brain, Healthy Brain, Stroke, Brain Tumour, A-Z
of Brain Disorders, research, news, events, library, links,
Carers Australia Whats New ?, research, advocacy, information,
resources, links to further information, links to state organisations and more.
CP Australia Works to create a national focus on cerebral palsy to
promote the interests, rights, roles and wellbeing of people with cerebral palsy and similar disorders. News, initiatives,
publications, search engine. Links provided to state associations.
Cystic Fibrosis Australia News, events, research, resources, forums,
links to State organisations, CF stories and much more.
Epilepsy Action Australia Understanding Epilepsy, interacting with Epilepsy,
news, media & resources, publications, sections for both Teens and Kids, First Aid information and more. In particular,
check the section on Epilepsy & Seizures linked from the home page.
MS Australia [Multiple Sclerosis] Research, how they can help, news &
events, publications, archived material, online learning, newsletter, resources and more.
Muscular Dystrophy Association The Australian national association. Extensive
information on the vast range of disorders, 101 questions, resources, linked sites, programs, research, support.
Autism Asperger ACT In the process of amalgamating sites. Covers
events, resources, links to further information, contact details and more.
Down Syndrome NSW Whats New ?, information, new parents, forum,
photo gallery. newsletter, library, dads, links [including to other groups], blog and more.
Interchange Victoria Provides support to families who have a child
with a disability. Interchange provides respite and social support through the help of carefully selected volunteers.
Interchange programs included, host care, youth groups, school holiday programs, camps, sibling and family activities.
Northcott Society, The New South Wales group who support
children with neuro-muscular disabilities and acquired injuries. Services, support mechanisms.
Novita [Connecting Kids with Their World] Provides therapy,
equipment and home support services to children and young people with disability, as well as inclusion support to child care
services in northern and western country regions of South Australia.
Physical Disability Council of NSW FAQs, news, issues, publications, priorities,
education, student index, online guide, service guide and more.
Spinal Injuries Association [Qld] Services & support, getting
involved, injury prevention, news & events and more. Presently undergoing site reconstruction,
but still usable.
Yooralla Yooralla provides quality disability services for Victorians in
need. Services, publications, news and further links.
International Sites :
Arthritis Foundation [US] Resources, research, magazine [see below],
conditions & treatments, message board, quiz, drug guide and more.
Congenital Heart Information Network Information and other data is grouped under 4 major
heading - Community, Resources, Links and About. The middle two would be of most value in Australia.
Cystic Fibrosis Foundation Provides information about Cystic Fibrosis, FAQs, testing,
living with Cystic Fibrosis, treatments, research, a pharmacy, drug development information,
National Down Syndrome Society The mission
of the National Down Syndrome Society is to benefit people with Down syndrome and their families through national leadership in
education, research and advocacy. US based.
NSCIA [The National Spinal Cord Injury Association] News & information, a
new injury, A-Z of Resources, surveys and studies, press room as well as information specific to the US.
Osteogenesis Imperfecta Foundation Provides information for groups from
Parents, through Youth to Caregivers and Volunteers, news & events, medical treatment information, resources, Chat Room,
links and more.
146;
Childrens Sites Sites geared to children of all ages, rather than for adults and professionals.
Do2Learn A range of Free [and Fee-based] resources for children with impairments, including physical impairments.
Siblings Australia Inc. Services for Siblings of Children with
Special Needs. Resources, books & articles, links, service providers, workshops and sections for various ages.
Education Sites Sites geared to all aspects of education and schooling. You should also check other relevant
state/territory links on the main Special Education page. :
Australian Association of Special Education Concerned with all
who have special education needs. Links to state chapters, journals, links to further information, position papers and
more.
Disability Access [NSW] Find information
and links about special education in New South Wales. Covers all disabilities, not just physical.
District Support Services [SA] This section
will explain to you what support is available from your preschools/schools district office. Covers all
disabilities.
Inclusive Education Includes information on inclusive
learning environments, care & protection, student activity enhancement, community support and more.
Physical
Impairment Information from Education Queensland. Provides information regarding publications, activities and support
strategies. For further information on Physical Impairment ?, go to this
site.
Program for Students with
Disabilities Information from the Department of Education and Early Childhood Development, Victoria. Includes details
relating to physical disabilities.
Special Education [NT] Brief
information and a range of contacts to find out what is available in multiple areas.
Special Education Section [ACT] Find information
and links about special education in the ACT. Covers all disabilities, not just physical.
Schools & Other Teaching Centres :
Noahs Ark Inc. Victorias largest Early
Childhood Intervention and Inclusion Support Program for children with additional needs. Playworks is one of their special units.
Regency Park School Regency Park School is a specialist South
Australian Government school for students with physical and related disabilities.
St. Lukes Pre-School Field Work
[Victoria] Use a field worker to ensure support and inclusion of children in state-run preschools.
The Spastic Centre Based in NSW and providing services
not only for children but also adults. Primarily based around Cerebral Palsy.
G - L
General Sites & Portals - :
Australian Sites :
Disability Information and Resource Centre Information on disability
issues. EnableNet is no longer being funded and has now closed, but redirects visitors to this site.
Infoxchange Australia HYas collated links into
directories covering all aspects of disability, ranging from Accommodation & Respite through to Travel & Holiday.
Physical Disability A range of information
covering the variety of physical disabilities providing overviews, causes, statistics and more.
International Sites :
Christopher and Dana Reeve
Paralysis Resource Centre Information and resources on spinal cord injury stretching from general information, tools &
tech., Ask a Question, resources, information for caregivers and more.
International Guide to [Movement Disorder Patient Advocacy
Groups and Foundations] Provides a comprehensive listing of [ ] organisations around the world committed to
facilitating accurate diagnosis and access to up-to-date care. These organisations have established support services
for individuals with specific movement disorders and their families. Select condition from drop down listing.
Government Agencies & Bodies This includes those at both state and federal level and includes both
agencies and government-related groups.
Early Childhood Intervention [Victoria] Information for support of children with a disability or development delay, from birth to school
entry.
Fact Information Sheets [For parents of children with a disability] From the
Department of Human Services, Victoria. Covers multiple conditions. [.PDF format download.]
Family Assistance Office A Federal Government
funded entity helping families find information and services provided by the Federal Government.
Payments -
Centrelink Part of a larger site relating to payments from Centrelink, part of which relates to Disability Support
Pensions [age 16+].
M - R
Magazines & Journals Includes both online and print versions.
Archives of
Disease in Childhood Provides full text coverage, with abstracts and either one/ both of, HTML or .pdf
presentations for each individual article.
Arthritis Today The consumer health magazine,
published by the Arthritis Foundation [US].
Brain Injury Covers all aspects of brain injury
from basic science, neurological techniques and outcomes to vocational aspects, with studies of rehabilitation and outcome of
both patients and their families. Free sample copy, tables of contents, find related journals.
Child Neuropsychology [A Journal on Normal and Abnormal
Development in Childhood and Adolescence] Free sample copy, tables of contents, find related journals.
Journal of School Health Most articles have summaries,
many have full-text presentations and/or .pdf downloads. The latest volume is completely Free.
Link Disability Australia, Fee-based magazine.
Archive of issues, Free e-newsletter, presented in plain English.
Pediatric Rheumatology An online journal published by BioMed Central.
Pediatric Rheumatology is a continuation of Pediatric Rheumatology Online Journal, which began publishing in 2003. Still
remains online.
Preventing Chronic Disease Public health research and practice information from
the Centre for Disease Control. Full-text. Covers a range of world wide information.
Quest A digital, online magazine
produced by the Muscular Dystrophy Association [Australia]. Read articles online, download them if desired. Current and
archived issues.
Parental Involvement, Information & Support Includes support for parents as well as providing them
with information and assistance.
Child & Parent
Disability This page provides links to a variety of child and parent disability resources. From the Raising
Children Network.
Hemiparents Dedicated to providing the most up to date information
available to assist in the rehabilitation of your child as well as being a community which offers support for the parent or
carer of a child with Hemiplegia. Site presently being revamped.
MyTime Provide[s] local support for mums, dads, grandparents and anyone
caring for a young child under school age with a disability or chronic medical condition.
Physical Impairment Causes This includes information on specific diseases and conditions that may effect a
loss of learning.
Diseases & Conditions :
Arthritis :
Arthritis in Childhood [Juvenile
Arthritis, Juvenile Rheumatoid Arthritis] Question and answer based information, a glossary, related articles [annotated
information], related topics, RSS feed and much more.
Arthritis in Children There are
various types of childhood arthritis, which can last from several months to many years. Multiple section from what it is,
causes, who gets it, diagnosis, treatment, prevention, children living with arthritis and more.
Arthritis in Children [2] From
how joints works, through conditions, how it will affect children. treatments, FAQs, discussion forum and more.
Kidswitharthritis Fact Sheets, Childrens Experiences, general
articles, professional articles and more.
Brain Injuries :
Acute
Brain Injury [A Guide for Family and Friends] An online book covering everything from How
Does the Brain Work ? through general and specific information to What are Suggestions for Coping ?
There are 21 sections including those on terminology and resources. Highly Recommended !
Brain Injury Integration Centre The Australian Brain Injury
Integration Centre specifically works with individuals who have been diagnosed with short term working memory deficit after a
traumatic brain injury. Our main aims are to give these individuals hope and opportunity that they will one day feel confident
and capable in participation as valued members of our community and society.
Head and Brain Injuries Extensive factual,
medical information is provided. Tutorials, Reference Shelf and Related Issues are also
provided as are pages for Children and Teenagers. All via links to relevant sites.
TBI Glossary Done by the Brain Injury Resource Centre Incorporates
simplified medical terminology.
Traumatic Brain Injury A question and answer presentation ranging
from Who suffers from TBI ? through signs & symptoms, medical care, complications, resulting disabilities,
rehabilitation, potential long-term problems and even How Can TBI be Prevented ?
What is Traumatic Brain Injury ? A Fact Sheet that covers all
the basics very simply but also has links to causes, signs & symptoms and also potential outcomes.
Cerebral Palsy [1] From causes to
growing up with CP. From the US National Institute of Neurological Disorders and Stroke.
Cerebral
Palsy [2] From Better Health, Victoria. Fact sheet with sound basic information. Links to related fact sheets on aspects of
cerebral palsy and related areas.
Origins of Cerebral Palsy Provides useful information on
causes or origins of cerebral palsy : the etiology of CP - etiology, causal pathways. Also has treatment,
education issues, publications, links, forum, associated diseases and much more.
Chronic Health Conditions Includes conditions such as asthma, diabetes, epilepsy,
Asthma Information For information see the links on this
page for information on a condition that affects a significant percentage of children to one degree or another.
Asthma Health Centre From myDr in Australia.
Articles, quizzes, illustrations, animations, special features and news about asthma.
Cystic Fibrosis [MedLine Plus] Extensive factual,
medical information is provided. Tutorials, Reference Shelf and Related Issues are also provided as are pages for Children and
Teenagers. All via links to relevant sites.
Diabetes Information For information regarding all aspects
of Diabetes, treatment, medications, support, etc., follow this link to the Medical Information section of this site.
Epilepsy & Seizures From myDr in Australia.
4 main sections covering Epilepsy, diagnosis & treatment, partial & generalised seizures and febrile fits.
Epilepsy - Seizures
Explained From Better Health, Victoria. Fact sheet with sound basic information. Links to related fact sheets on the
nervous and neuromuscular systems.
Congenital Malformations :
Basic Summary for Congenital
Malformations What it is; names & aliases of congenital malformations; types; how serious is ; what causes
them; how are they treated; society issues. Links to further, and also related, pages
Birth Defects Home From the US Centres for Disease Control and
Prevention. The site provides a range of information on Basic Facts about Birth Defects, using a question and response
technique.
Congenital Disorder From Wikipedia. Covers terminology,
severity range, occurrence rate, causes, risks throughout gestation, references, further links and related information.
Congenital Heart Defects [MedLine Plus]
Extensive factual, medical information is provided. Tutorials, Reference Shelf and Related Issues are also provided as are
pages for Children and Teenagers. All via links to relevant sites.
Introduction : Congenital Malformations Provides a basic summary, a prognosis of various malformations, types of malformations, information about deaths from
congenital malformations and statistics regarding these.
List of Congenital Disorders From Wikipedia,
the Free encyclopedia An extensive listing from 5p Syndrome to Wolf-Hirschhorn Syndrome, each
item linked to information about the particular disorder.
Genetic Disorders Including such conditions as Downs Syndrome,
Downs Syndrome [1] Extensive information from
Wikipedia. Everything from history to characteristics, incidence, screening, research and more. The external links section is
very extensive.
Downs Syndrome [2] Covers causes,
how it affects children, medical problems, prenatal screening and diagnosis and getting help. US Based site.
Downs Syndrome [3] [Recommended Down Syndrome Sites on the
Internet] Here are the sites that I feel have the most to offer parents of children with Down syndrome. Quite
extensive listing, grouped in 12 topic areas.
Downs Syndrome [MedLine Plus] Also known as
Trisomy 21. Extensive factual, medical information is provided. Tutorials, Reference Shelf and Related Issues are also
provided as are pages for Children and Teenagers. All via links to relevant sites.
Down Syndrome
- The School Experience From Better Health, Victoria. Fact sheet with sound basic information. Links to related fact
sheets on aspects of Down Syndrome.
Genetic
Disorders From Disability Online [Aust.]. Provides basic information about single gene disorders, chromosome
abnormalities, mitochondrial disorders, where to get help and Things to Remember. There are also links to a range of related
information about specific disorders. Download the Genetic Disorders
Fact Sheet [.pdf format].
Kabuki Syndrome From Better
Health, Victoria. Fact sheet with sound basic information. Links to related fact sheets on genes, genetics and genetic services
in Victoria.
SAKKS - Kabuki Syndrome Supporting Aussie Kids with Kabuki
Syndrome. Has information regarding the condition, stories, international links, early learning/education links,
articles, contacts, discussion forum and much more.
Medical Problems Including such areas as cancer,
Apparelyzed [Types of Paralysis ] Looks at
the various forms of paralysis, but goes way beyond this. Adaptive equipment, research, parenting, equipment supplies,
directories, links and more.
Cancer For information regarding all forms of cancer,
treatment, medications, support, etc., follow this link to the Medical Information section of this site.
Muscular Dystrophy :
Muscular Dystrophy [1] Find information on
Symptoms & Signs, Diagnosis & Tests, Prevention & Expectations, Treatment & Monitoring. All from one site.
Muscular
Dystrophy Explained From Better Health, Victoria. Fact sheet with sound basic information. Links to related fact sheets
on aspects of muscular dystrophy and related illnesses.
Muscular Dystrophy [MedLine Plus] Extensive
factual, medical information is provided. Tutorials, Reference Shelf and Related Issues are also provided as are pages for
Children and Teenagers. All via links to relevant sites.
Muscular Dystrophy [Wikipedia] Everything from history to
characteristics, incidence, screening, research and more. Also an extensive listing of neuromuscular diseases.
What are Muscular Dystrophies ? A Fact Sheet from The
Centre for Genetics Education, Australia. As well as information it provides links to related fact sheets from the same
group. .PDF format.
Neurological Disorders :
Motor Neurine Disease Explained From Better Health, Victoria. Fact sheet with sound basic information. Links to related
fact sheets on aspects of motor neurone disease and its impact.
Neurology Channel, The Provides comprehensive,
trustworthy information about conditions that affect the nervous system [brain, spinal cord, nerves, and muscles]. Has
conditions from ADHD through to Vertigo. Each has an overview of the condition, information on different types of the condition
where relevant, incidence & prevalence, then further links to additional information on specific aspects related to the
condition. You can also view stories from people suffering from the condition. There are also resources, links and professional
sections.
We Move™ The Internets most comprehensive resource for movement
disorder information. Information is provided about conditions from Ataxia to Wilson Disease. In addition there is research
information, a glossary, news, discussion forum and more.
World Forum - Neuromuscular Diseases This site is an entrance
to a wealth of information related to neuromuscular disorders. Find associations in your country, information on specific
diseases, family support groups, research information, news and answers to frequently asked questions.
Orthopaedic Conditions :
Additional Resources
on [Pediatric Orthopaedic Conditions] Youll find information on a range of musculoskeletal
conditions common in childhood, links to other Web sites, and a glossary at this site.
Orthopaedics Glossary From About.
Has links to items from AC Arthritis through to Whiplash, bout 100 in all. Each entry gives a definition
and links to further/related information.
Osteogenesis Imperfecta Also called Brittle Bone disease.
Fast Facts From the OI Foundation.
Definition, prevalence, diagnosis, clinical features [8 types, inheritance factors, treatment and prognosis. You can also
download a 12 page pamphlet covering all the essential information and
also access a Glossary which is quite extensive.
Osteogenesis Imperfecta [MedLine Plus]
Extensive factual, medical information is provided. Tutorials, Reference Shelf and Related Issues are also provided as are
pages for Children and Teenagers. All via links to relevant sites.
Osteogenesis Imperfecta [Wikipedia] Everything from
history to characteristics [of various types], portrayal in popular culture, treatment, references in print, links and more.
Spina Bifida :
Children with Spina Bifida [A
Resource Page for Parents] Diagnosis, learning issues, tests, treatment, family support and famous people who
suffer it.
Spina Bifida [1] Find information on Symptoms &
Signs, Diagnosis & Tests, Prevention & Expectations, Treatment & Monitoring. All from one site.
Resources :
Brain Injury Resource Centre A huge range of information, some
on the site, some via listed links. If you need to know something in this area, you will probably find it here.
Brain Spot, The Has resources, games and much more, all on a site
designed specifically for people having difficulty accessing the web.
Congenital Heart Disease From Yale University. A vast array of
images and information covering virtually every congenital heart disease. Ensure you read the User Instructions page
to gain the maximum. Also has an Illustrated Glossary, abbreviations and syndromes listings.
Disability Link Barn, The Part of the
Access Unlimited site with links to material covering most physical disorders.
Head Injuries Follow the links [ ] to find
information about head injuries, including facial and hearing injuries, in children and adults.
Juvenile Arthritis Centre Articles, Doctors
Views, Medication information, Procedures & Tests, Diseases & Conditions, Health News, Tools & References,
Glossary.
Untangling the Web - Mobility A vast listing of links is
provided by this US site. Grouped in directories, it covers more than just physical disabilities and mobility.
Resources for Professionals :
ILC Education [Vic.] ILC.ed is a statewide
education program provided by the Independent Living Centre. It aims to offer quality education and training to health
professionals, carers and other people who work with people with disabilities. Education focuses on equipment relating to
people with disabilities.
National Clearinghouse [Of Rehabilitation Training Materials]
A centralized resource for the development, collection, dissemination, and utilization of training materials.
[US Based]
S - Z
Technology, Learning :
General information Includes links to portal sites covering both information and
suppliers of adaptive and other technology.
Achievable Concepts
Adapted Recreation and Sporting Equipment for People with Disabilities [and the Aged].
Independent Living Centres Australia Inc. We have a
database of Assistive Technology products and services to improve their daily living. Access through their links to
suppliers and resources in all states and territories. Covers more than just physical disabilities.
Spectronics Australian supplier. Whats new ?,
FAQs, catalogue, equipment trials, training, assessment services and more.
TADVic An organisation whose volunteer members design, construct or
modify equipment for people with disabilities.
Telstra Disability Services Extensive information about
all the techniques and tools supplied by Telstra to aid those with disabilities.
Specific information Includes links to specific adaptive and other technology & equipment.
Assistive Technology A listing of annotated
links to a variety of assistive technology. Covers more than those for physical disabilities.
Software for People With Disability A listing of annotated
links to a variety of software. Covers more than those for physical disabilities.
Tools, Techniques & Strategies Primarily designed for teachers and other educational personnel, but also
usable by parents
Classroom Strategies The following links provide access to strategies developed in British
Columbia covering the range of conditions noted. While Canadian in basis, they are applicable in all educational settings,
allowing for any peculiarity of systemic requirements.
Strategies for Teaching Students [With
Motor/Orthopedic Impairments] Covers a range of situations covering General Strategies through to Group Interaction and
Testing.
Tutorials Covers
a range of tutorials developed by Education Queensland designed and developed to assist staff using resources and equipment
with students..